What is Scleroderma?

Learn More About Scleroderma

Scleroderma is a rare condition where overproduction of collagen thickens connective tissue.  The name means “hard skin” and this is one of the most common and visible symptoms of the disease.  The presentation of scleroderma varies from individual to individual.  It is not contagious, infectious, or cancerous.  It is estimated that 300,000 Americans and 17,000 Canadians have scleroderma. 

Diagnosis of scleroderma is based on symptoms, medical history, blood tests, and other diagnostic studies.  Symptoms vary widely depending on which parts of the body are being affected by the disease.  Scleroderma is often mistaken for Rheumatoid arthritis and lupus because they have many symptoms and biological markers in common.  Because it is a rare disease, many physicians may never have seen a patient with Scleroderma before.  This can delay an accurate diagnosis. 

Scleroderma is a chronic disease with no known cure.  Current treatments focus on managing symptoms.  Because scleroderma can manifest in different system of the body, people with the disease often have a team of multiple disciplines to create their treatment plan.

The National Scleroderma Foundation and Scleroderma Canada are the two organizations in North America to provide support and education to people with scleroderma.  Additionally, they advance medical research, promote disease awareness, and foster advocacy on behalf of those living with scleroderma.